Apologies to readers

Apologies to all our readers for the disappearance of this website from Friday afternoon 9th March until Monday morning 12th March.

Our web hosting service have said this was due to an error on their part and have promised to ensure that as far as is humanly possible this will not happen again.

Sheffield Autistic Society

New service from Sheffield Autistic Society: Drop-In Sessions

Mondays 11am – 2pm
The Circle
33 Rockingham Lane
S1 4FW

Our drop in sessions are available for friendly support, advice and signposting. You can also borrow books from our library. No appointment needed just call in for a chat and find out more.

If you do need a longer face-to-face session then please ring our helpline on 07923 473240 or email liz.sasoc@gmail.com to make an appointment.

Consultation on Short Break Services for Disabled Children and Young People

Sheffield City Council says:

Have Your Say

Short Break Services for Disabled

Children and Young People in Sheffield

We are running an online and postal survey about how we deliver short breaks to disabled children and young people and their families in Sheffield. Have Your Say on proposals for the delivery of short breaks in Sheffield.

When and How?

We are running an online and postal survey about how we deliver short breaks to disabled children and young people and their families in Sheffield.

The survey will run from 4th December 2017 to 9th March 2018.

The link to the survey is https://sheffield.citizenspace.com/cypfs-business-strategy/short-break-and-respite-services-consultation

What we are proposing to change

This consultation is about proposed changes to:

The Short Break Grant – a one-off annual payment to families up to £400

Special Needs Inclusion Playcare Service (SNIPs) – Saturday, holiday or after school daytime activities in mainstream clubs

Special Needs Inclusion Playcare Service (SNIPs) – Saturday, holiday or after school daytime activities in targeted clubs for disabled children and young people only

To explore the possibility of developing a facility in the city for 16-25 year olds offering both overnight stays and daytime support for young people

Who can take part?

This questionnaire is for all parent carers and children/young people who currently use, have used, or plan to use short break and/or respite services in Sheffield. This consultation is about the potential impact of the different proposals, how they will affect families.

Where can I find more information?

Website: http://www.sheffield.gov.uk/content/sheffield/home/social-care/short-breaks.html

Email: shortbreaksconsultation@sheffield.gov.uk

Telephone: 0114 273 5611

Strategic Review of SEND Provision in Sheffield

On 15th February 2018 we received this message from Eva Juusola of Sheffield Parent Carer Forum:

Dear parent support groups,

I contacted you in early January to ask you for your views about a document I had written which tried to summarise feedback from parents about SEN provision. Thank you to everyone who took the time to respond.

We submitted our report to the local authority in mid January, and they have today published a summary of the main themes that came out of this first call for views.

You can download it from our website: http://sheffieldparentcarerforum.org.uk/news/strategic-review-of-send-provision/

This is an important piece of work, as it could lead to significant changes in local provision. If it’s okay with you, I will send you regular updates as a work progresses. If you don’t think this is relevant to your group, please let me know and I will take you off the circulation list.

Best wishes

Eva Juusola
Participation Co-ordinator

Sheffield Parent Carer Forum
St Mary’s Community Centre
Bramall Lane
S2 4QZ

Telephone: 0300 321 4721
Website: www.sheffieldparentcarerforum.org.uk
Facebook: www.facebook.com/SheffieldParentCarerForum/
Twitter: http://twitter.com/ShefParentForum

Updated PIP Guide from Disability Rights UK (includes psychological distress judgement changes)

Disability Rights UK Announces 31st January 2018:

“Our PIP Guide has been updated to include PIP psychological distress judgement

Our PIP Guide has now been updated to include changes to regulations following the High Court decision RF v Secretary of State for Work and Pensions.
From 16 March 2017, new PIP rules (regulations) prevented an award of the enhanced PIP mobility rate, for claimants who suffered psychological distress and needed someone with them when when trvelling on familiar journey.

The High Court decision has removed (quashed) these rule changes because they are considered discriminatory and against your human rights.

This means that the old rules apply and these have been restored to our guide

The changes affect Appendix C, Activity 1: Planning and Following a Journey – c,d and f.”

To download the guide go to this page.

3 new events on our Other Events page

For further details of all these events please go to our Other Events page

AUTISM DIALOGUE (Monthly): Autistic, group-led programme for all autistic adults.
Next event – Tuesday, February 13th, 2018.

A fun and friendly sports and activity group for people with disabilities (particularly suitable for developmental needs; e.g. Learning Disabilities, Autism)
Time and day: Friday mornings 10.30-12.30

HELP ME TO HELP MYSELF – Valuable Coping Skills
Free event for parents of people with autism and complex needs
Manchester 13th March 2018




SENSE Report and campaign ‘When I’m Gone’ on long-term support for disabled people

The charity SENSE have issue a report and begun a campaign on long-term support for disabled people. Many disabled people are supported by their families. Family members play a key role in enabling and empowering them, becoming experts in their care. Few families have felt able to put plans in place for the future. According to SENSE:

  • 1.7 million disabled people are supported by their friends and families. 75% have no plan for the day that support is no longer available.
  • 67% of carers have profound fears about what will happen to their relative when they are no longer able to provide care.
  • Two thirds of local authorities are unaware of how many disabled adults in their area are currently being cared for by family and friends at home.
  • Only a quarter of councils routinely provide support to make contingency plans for future care.

To read about the campaign, to download the report ‘When I’m Gone’ and the document ‘Decisions to Make, Steps to Take’, go to https://www.sense.org.uk/support-us/campaign/when-im-gone/

Government to review all PIP benefit claims after accepting court ruling

It is reported in the Guardian that, “The government is to review about 1.6m disability benefit claims made over the past four years as part of major U-turn that will see an estimated 220,000 claimants eventually receive backdated higher awards.”

Read the full story in the Guardian article of 30th January.

NB As far as we know at present, this will not mean that claimants will need to make any new claims or undergo any new PIP assessments.

People with hidden disabilities such as autism could be given blue badge parking permits in England under new government proposals.

According to the BBC today:

“People with hidden disabilities such as dementia and autism could be given blue badge parking permits in England under new government proposals.

The Department for Transport said that only some councils currently recognised hidden disabilities.

It said the proposed new policy was designed to provide “clear and consistent” guidelines.”

For the full story see: http://www.bbc.co.uk/news/uk-42763767

Disability Sheffield Fundraising Gig this Saturday 20th January

Disability Sheffield invites you and your friends to an evening of guitar rock sensations, Millstone Grit, followed by the sublime and wonderful MeerCat Jazz band and last but not least the amazing drag artiste, Tia-Anna. And it’s happening THIS Saturday.

All this in just one evening for your pure entertainment and at a phenomenally low cost of £6/£5 per person too. All proceeds go to help keep going the vital services Disability Sheffield provides to support disabled people in Sheffield.

So have a great evening and know that by doing so you’re also supporting disabled people who might need Disability Sheffield services in the future too.  
Although spring is on its way – somewhere – January evenings are still dark, damp and cold. Why wait for the good times when you can have a happy boost this Saturday? Get your friends and colleagues together and join in the fun.

There’s a bar, LIVE MUSIC, dancing if you want to, the obligatory raffle (but ours is quite a good one!)

So the details are:

Pick ‘n’ Mix 2018
Saturday 20th January 2018
The Crookes Social Club, Mulehouse Road, Sheffield, S10 1TD
7.30 pm – 11.30 pm
£6.00 (£5 concessions)