Strategic Review of SEND Provision in Sheffield

On 15th February 2018 we received this message from Eva Juusola of Sheffield Parent Carer Forum:

Dear parent support groups,

I contacted you in early January to ask you for your views about a document I had written which tried to summarise feedback from parents about SEN provision. Thank you to everyone who took the time to respond.

We submitted our report to the local authority in mid January, and they have today published a summary of the main themes that came out of this first call for views.

You can download it from our website:

This is an important piece of work, as it could lead to significant changes in local provision. If it’s okay with you, I will send you regular updates as a work progresses. If you don’t think this is relevant to your group, please let me know and I will take you off the circulation list.

Best wishes

Eva Juusola
Participation Co-ordinator

Sheffield Parent Carer Forum
St Mary’s Community Centre
Bramall Lane
S2 4QZ

Telephone: 0300 321 4721

Updated PIP Guide from Disability Rights UK (includes psychological distress judgement changes)

Disability Rights UK Announces 31st January 2018:

“Our PIP Guide has been updated to include PIP psychological distress judgement

Our PIP Guide has now been updated to include changes to regulations following the High Court decision RF v Secretary of State for Work and Pensions.
From 16 March 2017, new PIP rules (regulations) prevented an award of the enhanced PIP mobility rate, for claimants who suffered psychological distress and needed someone with them when when trvelling on familiar journey.

The High Court decision has removed (quashed) these rule changes because they are considered discriminatory and against your human rights.

This means that the old rules apply and these have been restored to our guide

The changes affect Appendix C, Activity 1: Planning and Following a Journey – c,d and f.”

To download the guide go to this page.

3 new events on our Other Events page

For further details of all these events please go to our Other Events page

AUTISM DIALOGUE (Monthly): Autistic, group-led programme for all autistic adults.
Next event – Tuesday, February 13th, 2018.

A fun and friendly sports and activity group for people with disabilities (particularly suitable for developmental needs; e.g. Learning Disabilities, Autism)
Time and day: Friday mornings 10.30-12.30

HELP ME TO HELP MYSELF – Valuable Coping Skills
Free event for parents of people with autism and complex needs
Manchester 13th March 2018




SENSE Report and campaign ‘When I’m Gone’ on long-term support for disabled people

The charity SENSE have issue a report and begun a campaign on long-term support for disabled people. Many disabled people are supported by their families. Family members play a key role in enabling and empowering them, becoming experts in their care. Few families have felt able to put plans in place for the future. According to SENSE:

  • 1.7 million disabled people are supported by their friends and families. 75% have no plan for the day that support is no longer available.
  • 67% of carers have profound fears about what will happen to their relative when they are no longer able to provide care.
  • Two thirds of local authorities are unaware of how many disabled adults in their area are currently being cared for by family and friends at home.
  • Only a quarter of councils routinely provide support to make contingency plans for future care.

To read about the campaign, to download the report ‘When I’m Gone’ and the document ‘Decisions to Make, Steps to Take’, go to

Government to review all PIP benefit claims after accepting court ruling

It is reported in the Guardian that, “The government is to review about 1.6m disability benefit claims made over the past four years as part of major U-turn that will see an estimated 220,000 claimants eventually receive backdated higher awards.”

Read the full story in the Guardian article of 30th January.

NB As far as we know at present, this will not mean that claimants will need to make any new claims or undergo any new PIP assessments.

People with hidden disabilities such as autism could be given blue badge parking permits in England under new government proposals.

According to the BBC today:

“People with hidden disabilities such as dementia and autism could be given blue badge parking permits in England under new government proposals.

The Department for Transport said that only some councils currently recognised hidden disabilities.

It said the proposed new policy was designed to provide “clear and consistent” guidelines.”

For the full story see:

Disability Sheffield Fundraising Gig this Saturday 20th January

Disability Sheffield invites you and your friends to an evening of guitar rock sensations, Millstone Grit, followed by the sublime and wonderful MeerCat Jazz band and last but not least the amazing drag artiste, Tia-Anna. And it’s happening THIS Saturday.

All this in just one evening for your pure entertainment and at a phenomenally low cost of £6/£5 per person too. All proceeds go to help keep going the vital services Disability Sheffield provides to support disabled people in Sheffield.

So have a great evening and know that by doing so you’re also supporting disabled people who might need Disability Sheffield services in the future too.  
Although spring is on its way – somewhere – January evenings are still dark, damp and cold. Why wait for the good times when you can have a happy boost this Saturday? Get your friends and colleagues together and join in the fun.

There’s a bar, LIVE MUSIC, dancing if you want to, the obligatory raffle (but ours is quite a good one!)

So the details are:

Pick ‘n’ Mix 2018
Saturday 20th January 2018
The Crookes Social Club, Mulehouse Road, Sheffield, S10 1TD
7.30 pm – 11.30 pm
£6.00 (£5 concessions)


A special thank you to the Springvale pub from the Sheffield Autistic Society

We would like to say a massive thank you to the Springvale Pub at Commonside Sheffield 10 who have supported us so well  this year.  They held a fantastic fundraising evening which not only raised awareness about autism but the incredible sum of £300.   They have also held a toy collection to make sure our kids have a wonderful Xmas and raised a further £112 in the collection box. It’s acts of generosity like this that allows us to continue our charity in supporting children and adults with autism and their families and friends.

 Once again thank you to all the staff and customers at the Springvale for their generosity.

Sheffield Autism Partnership: An Update and an Invitation to Get Involved

This morning Frazer Kirk of Sheffield City Council, sent out a ‘progress report’ about the Sheffield Autism Partnership and Autism Partnership Board, and an invitation to become involved.  The Partnership and the Board urgently need more people and organisations to become involved if they are to be successful in their goal of improving services and support to autistic people and their families and carers in Sheffield.

The text of Frazer’s letter can be read here: Autism Partnership Update (Word format). There are 3 attachments which you can download: