Sheffield Autistic Society Annual General Meeting Wed 16th May

The Annual General Meeting (AGM) of Sheffield Autistic Society will take place on Wednesday 16th May 2018 from 12:30 to 14:30 pm

at the Carers Centre
Concept House,
5 Young Street,
Sheffield, S1 4UP

AGENDA

  1. Welcome and Introduction by Chair
  2. Secretary’s Report
  3. Treasurer’s Report
  4. Reports from other areas
  5. Plans for the future
  6. Feedback from parents/carers
  7. Any Other Business

 

New logo design

The Sheffield Autistic Society logo is changing. We have decided no longer to use a design based on jigsaw puzzle pieces – a symbol for autism that has been widely used for several decades. The reason for the change is in order to acknowledge a growing concern amongst the autistic community that the use of puzzle pieces reflects a potentially negative view of autism. To continue to use the symbol would be disrespectful to autistic people, a view that was expressed in a recent editorial in the journal Autism, which has now changed its own cover design accordingly.

Our new logo retains the familiar diamond shape and the colours of the previous version. Instead of the puzzle pieces, we have 4 circles of different colours, with perhaps the suggestion of different individual persons, autistic or otherwise, simply coming together.

We intend to replace our printed stationery, whenever we need to reprint it, in order to reflect this change.

Apologies to readers

Apologies to all our readers for the disappearance of this website from Friday afternoon 9th March until Monday morning 12th March.

Our web hosting service have said this was due to an error on their part and have promised to ensure that as far as is humanly possible this will not happen again.

Sheffield Autistic Society

New service from Sheffield Autistic Society: Drop-In Sessions

Mondays 11am – 2pm
The Circle
33 Rockingham Lane
Sheffield
S1 4FW

Our drop in sessions are available for friendly support, advice and signposting. You can also borrow books from our library. No appointment needed just call in for a chat and find out more.

If you do need a longer face-to-face session then please ring our helpline on 07923 473240 or email liz.sasoc@gmail.com to make an appointment.

Consultation on Short Break Services for Disabled Children and Young People

Sheffield City Council says:

Have Your Say

Short Break Services for Disabled

Children and Young People in Sheffield

We are running an online and postal survey about how we deliver short breaks to disabled children and young people and their families in Sheffield. Have Your Say on proposals for the delivery of short breaks in Sheffield.

When and How?

We are running an online and postal survey about how we deliver short breaks to disabled children and young people and their families in Sheffield.

The survey will run from 4th December 2017 to 9th March 2018.

The link to the survey is https://sheffield.citizenspace.com/cypfs-business-strategy/short-break-and-respite-services-consultation

What we are proposing to change

This consultation is about proposed changes to:

The Short Break Grant – a one-off annual payment to families up to £400

Special Needs Inclusion Playcare Service (SNIPs) – Saturday, holiday or after school daytime activities in mainstream clubs

Special Needs Inclusion Playcare Service (SNIPs) – Saturday, holiday or after school daytime activities in targeted clubs for disabled children and young people only

To explore the possibility of developing a facility in the city for 16-25 year olds offering both overnight stays and daytime support for young people

Who can take part?

This questionnaire is for all parent carers and children/young people who currently use, have used, or plan to use short break and/or respite services in Sheffield. This consultation is about the potential impact of the different proposals, how they will affect families.

Where can I find more information?

Website: http://www.sheffield.gov.uk/content/sheffield/home/social-care/short-breaks.html

Email: shortbreaksconsultation@sheffield.gov.uk

Telephone: 0114 273 5611

Strategic Review of SEND Provision in Sheffield

On 15th February 2018 we received this message from Eva Juusola of Sheffield Parent Carer Forum:

Dear parent support groups,

I contacted you in early January to ask you for your views about a document I had written which tried to summarise feedback from parents about SEN provision. Thank you to everyone who took the time to respond.

We submitted our report to the local authority in mid January, and they have today published a summary of the main themes that came out of this first call for views.

You can download it from our website: http://sheffieldparentcarerforum.org.uk/news/strategic-review-of-send-provision/

This is an important piece of work, as it could lead to significant changes in local provision. If it’s okay with you, I will send you regular updates as a work progresses. If you don’t think this is relevant to your group, please let me know and I will take you off the circulation list.

Best wishes

Eva
Eva Juusola
Participation Co-ordinator

Sheffield Parent Carer Forum
St Mary’s Community Centre
Bramall Lane
Sheffield
S2 4QZ

Telephone: 0300 321 4721
Website: www.sheffieldparentcarerforum.org.uk
Facebook: www.facebook.com/SheffieldParentCarerForum/
Twitter: http://twitter.com/ShefParentForum

Updated PIP Guide from Disability Rights UK (includes psychological distress judgement changes)

Disability Rights UK Announces 31st January 2018:

“Our PIP Guide has been updated to include PIP psychological distress judgement

Our PIP Guide has now been updated to include changes to regulations following the High Court decision RF v Secretary of State for Work and Pensions.
From 16 March 2017, new PIP rules (regulations) prevented an award of the enhanced PIP mobility rate, for claimants who suffered psychological distress and needed someone with them when when trvelling on familiar journey.

The High Court decision has removed (quashed) these rule changes because they are considered discriminatory and against your human rights.

This means that the old rules apply and these have been restored to our guide

The changes affect Appendix C, Activity 1: Planning and Following a Journey – c,d and f.”

To download the guide go to this page.

3 new events on our Other Events page

For further details of all these events please go to our Other Events page

AUTISM DIALOGUE (Monthly): Autistic, group-led programme for all autistic adults.
Next event – Tuesday, February 13th, 2018.

LEISURE TIME
A fun and friendly sports and activity group for people with disabilities (particularly suitable for developmental needs; e.g. Learning Disabilities, Autism)
Time and day: Friday mornings 10.30-12.30

HELP ME TO HELP MYSELF – Valuable Coping Skills
Free event for parents of people with autism and complex needs
Manchester 13th March 2018

 

 

 

SENSE Report and campaign ‘When I’m Gone’ on long-term support for disabled people

The charity SENSE have issue a report and begun a campaign on long-term support for disabled people. Many disabled people are supported by their families. Family members play a key role in enabling and empowering them, becoming experts in their care. Few families have felt able to put plans in place for the future. According to SENSE:

  • 1.7 million disabled people are supported by their friends and families. 75% have no plan for the day that support is no longer available.
  • 67% of carers have profound fears about what will happen to their relative when they are no longer able to provide care.
  • Two thirds of local authorities are unaware of how many disabled adults in their area are currently being cared for by family and friends at home.
  • Only a quarter of councils routinely provide support to make contingency plans for future care.

To read about the campaign, to download the report ‘When I’m Gone’ and the document ‘Decisions to Make, Steps to Take’, go to https://www.sense.org.uk/support-us/campaign/when-im-gone/