Research into Post-Diagnostic Support

Sheffield Autism Research Laboratory, part of Sheffield University, have published a report on their recent research into post-diagnostic support: what people received after being given their autism diagnosis, what support they would have liked to receive, and what the autistic community wants from support after getting an autism diagnosis.

You can read the report here: ShARL autism-report

Autistic Identity, Making Sense of Who I Am – webinar 14th September

“Autistic Identity, Making Sense of Who I Am” is a free webinar organised by Autistic Parents UK to be held on Wednesday 14th September, 8 to 9 pm.

Free funded spaces are available for autistic parents (donations are welcome).

In the webinar Dean Beadle, autistic speaker, trainer and advocate challenges stereotypes and negative societal attitudes still faced by autistic people and highlights how he has prioritised wellbeing.

For further information and to obtain tickets go to:

  • Autistic Parents UK is an Autistic-led Charity (CIO) and is committed to supporting Autistic parents in a number of ways:
  • online peer support groups (larger and smaller groups)
  • monthly webinars and live Q&A sessions
  • monthly book giveaways
  • local peer support groups
  • volunteer-led one to one peer support sessions

Sheffield Senior Blades Club choose Sheffield Autistic Society

Sheffield Senior Blades Club, the official over 60’s club for Sheffield United Football Club, have this year named Sheffield Autistic Society as their chosen charity.

The kit of the club’s sponsored player, Oliver Norwood, presented to him at the Senior Blades Shirt Sponsor Event (see photograph below) is to be raffled for the benefit of Sheffield Autistic Society.

Various news July and August 2022

Football Family Club training on Friday nights

at the Olympic Legacy Park Community Stadium S9 3TL for people who are registered disabled –  contact Adam Butcher for more information, tel: 0114 2263793, mobile: 07968 426420, email:

The annual ‘Move More’ big health event

for people with learning disabilities and autistic people is on Monday 12 September, 10am-2.30pm at the English Institute of Sport S9 5DA, offering workshops on cycling, wheelchair rugby, football and taekwondo.  Followed by ice skating. Places cost £3 – see the Move More Flyer.

Neurodiversity in the Criminal Justice System

(NAS summary of the new Report by the Criminal Justice Joint Inspectorate July 2022)

Sheffield Adult Social Care Redesign

Sheffield Adult Social Care is looking for local social groups or individuals who use its services to give feedback on planned improvements. Here is your chance to comment. See Adult Social Care Re-design 2022 – Customer Voice Flyer v2

Carers Together Groups in North and South Sheffield

The Sharing Caring Project ‘Carers Together’ service at Sheffield Mencap supports families caring for an adult with a learning disability and or Autism.  See the attached brochure: Carers Together Brochure

Participants wanted for autism psychology study

Message to Sheffield Autistic Society from Helen Basu Chaudhuri (Doctoral Researcher) Psychology Department, Sheffield Hallam University):

Participants Wanted

Study of the relationship between anxiety, alexithymia (difficulty identifying and describing feelings) and awareness of internal sensations in autistic people.

I am looking for autistic volunteers as well as family members and non-autistic people.

I am looking for volunteers, with and without a diagnosis of autism, to take part in a study examining the relationship between anxiety, alexithymia (difficulty identifying and describing emotions) and awareness of internal sensations in autistic people. The questionnaire aims to examine internal bodily sensations (e.g. hunger, fullness, thirst, nausea, fatigue, pains and aches, heartbeat awareness and bodily warmth), and was developed with the assistance of autistic people.

Participation in this study will involve completing five short questionnaires online:

  • 2 questionnaires about your awareness of your internal bodily sensations (e.g. hunger, fullness, thirst, nausea, aches and pains, heartbeat and bodily warmth)
  • A questionnaire about your usual feelings of anxiety – this will be used to ensure that the internal bodily sensations questionnaire is not inadvertently measuring anxiety
  • A questionnaire about health anxiety
  • A questionnaire about your ability to identify and describe emotions

Data collected from the survey will also be used for the researcher’s dissertation as part of her PhD, presentations and reports published in academic journals.

No names will be recorded, and all data will be anonymous.

To take part in the study online use the following link:

If you would like more information about the study, please contact:

Helen Basu Chaudhuri (Doctoral Researcher)

Psychology Department, Sheffield Hallam University)

Tel: 0784 0088 666


This study has received ethics clearance from Sheffield Hallam University Research Ethics Committee.

Transition to Adulthood – Free Online Event 24th June

Message from Susan Kirkman:

Adult learning disability and autism support provider Dimensions is hosting a free online event for any family whose child is leaving specialist education in the Summer of 2023 or 2024.

– You’ll gain top tips from people with learning disabilities and families who’ve recently been through the transition to adult social care.
– You’ll get the chance to put your questions to a panel of family experts.
– You’ll find out about housing options, different approaches to care and support, practical issues such as arranging your loved one’s finances and what you need to know about the law. And much else besides.

Don’t leave your loved one’s transition planning to the last minute – get informed now.

Transitions teams and schools also welcome to join us.

The event will take place via Zoom from 11am-12.30pm on 24th June.

Book your free place here:

Autistic Women’s Meet-Up Event 14 May

Half Day Event 

Autistic Women’s Meet-up event, Saturday 14 May, 1-4pm, Friends Meeting House, St James’ Street, S1 2EW, facilitated by SAPAG (Sheffield Asperger Parents Action Group)

This half day event is designed by autistic women in the Sheffield area for autistic women and those who identify as autistic women, diagnosed or undiagnosed, so that you can meet others like yourself in a safe environment to hear about some of their experiences of being female and autistic, share some of your own and get some support.

We will talk about topics such as diagnosis, disclosing that you are autistic, managing anxiety, masking and unmasking, communication, relationships and friends, employment…

Details: 14th May 2022   1pm – 4pm
Friends Meeting House, 10 St James’ St, Sheffield City Centre, Sheffield S1 2EW 

Click (ctrl+click) the link below for more information and to Book a Place


East Midlands Railway advertises autism friendly destinations and services

From East Midlands Railway:

“Autism and neurodiverse friendly attractions across our network
Events and venues around the UK are increasingly finding ways to cater for those who experience neurodiversity, making it easier for those on the autistic spectrum or with different needs to enjoy and take part in regular events and attractions.”

For more information see the link below:


Ambitious About Autism Youth Network

The Ambitious Youth Network, which has been generously funded by the Esmée Fairbairn Foundation, the National Lottery Community Fund and others, will offer autistic young people aged 16 to 25 a safe and moderated online space to help them understand their autistic identity and reduce isolation and loneliness that many feel.

Young people will be able to take part (free) in peer support sessions, share experiences and find volunteering, work experience and employment opportunities. There will also be opportunities for them to work together and campaign for change.

Last month we piloted the new online platform with existing members of our youth network and feedback so far has been extremely positive.

In the next three years Ambitious about Autism aims to support 5,000 autistic young people across the UK to access the Ambitious Youth Network.

If you would like to find out more about the platform or watch a presentation by a member of our Participation Team, please let me know.

Thanks and best wishes
Alison Worsley (Pronouns: she/her)
Director of External Affairs and Data Protection Officer
Ambitious about Autism


Take Part in a Study about Post Diagnostic Support for Autistic Adults

Received from Suzy Crowson (Sheffield University):

Hello, I hope this email finds you well. I am emailing to introduce myself and let you know about a research study that I am working on with Dr Megan Freeth and Dr Daniel Poole at the University of Sheffield.

What is the study?
In this study we are looking at the support autistic adults receive after being diagnosed. We want to hear about autistic peoples’ experiences of post-diagnostic support and whether the support on offer could be improved. From this, we will be looking at improving services to ensure that post-diagnostic support truly meets the needs of autistic adults.

Who are we looking for?
We are recruiting autistic adults who received a diagnosis as an adult (18+)  from a UK service within the last ten years to take part in this study.

What does taking part involve?
Taking part will involve contributing to 3 two-hour online workshops. The dates are given on an online form where you can register your interest. Participants who take part in all three sessions will receive a £75 voucher per session.

How do I express my interest in the study?
Please follow the link and complete the Google Form if you are interested in taking part:

Please note that there are a limited number of spaces available at the workshops. We will invite eligible participants and provide further information.
If you cannot take part in the workshops, but would like to contribute to the study there is an option to take part via questionnaire. More information is included on the expression of interest form.

What if I need more information to decide?
I very much hope that you would like to join us with this research. If you have any questions about the research, you can email me via, or the study principal investigator Megan (via
We are very happy to answer any questions you may have and can organise a phone call to talk to you about the project if that is something you might find useful.

Please feel free to share this email with anyone you know who might be interested in taking part in the study.

I think that this will be interesting and important work and whilst you may not benefit yourself you will be making a big difference for other autistic adults in ensuring that good support is available post-diagnosis.

Thank you very much for your time and I look forward to hearing from you.
Kind regards,
Suzy Crowson