The other day an autistic person was explaining to me why members of the autistic community are not happy with the term ‘Autism Awareness’ and preferred to talk about ‘Understanding’ and ‘Acceptance’. Googling these terms I found an American autism blog (see link below) which gives a series of articles explaining why autistic people felt so strongly on this issue. The following extract is one of these and was written by Lydia Brown, an autistic student at Yorketown University:
1. Accept us. Autism is a part of who we are. As sure as skin color or sexual orientation, we cannot change being Autistic. Acceptance starts by understanding that we are not broken, defective, or diseased. We do not need to be fixed or cured. There is nothing wrong with us. Yes, autism is a disability, and yes, some Autistic people are very severely disabled. Accepting our autism does not mean ignoring or denying disability; it means accepting us for who we are, as we are.
2. Respect us. We are people, fellow human beings. We deserve to be treated with the same respect afforded to our non-Autistic peers. Respect starts by understanding that we are full and complete human beings, with individual personalities, life experiences, goals, and preferences. We deserve an education, access to communication, and a place in society as we become adults. We deserve to live without fear of being abused, manipulated, or hurt. We are not less than.
3. Support us. Because we are disabled in varying degrees and in multiple ways, we need support, services, and accommodations to successfully navigate a world not made for us. Supporting us starts by understanding that we are usually the people who can best define what types of support and services we need, especially once we become adults. Some of us may need services throughout school and or higher education. Some of us need help with seeking and keeping employment. Some of us need help with living independently or semi-independently, or with activities of daily life. Without appropriate supports, we will not have equal access and opportunity.
4. Include us. We deserve equal access and opportunity throughout the community and throughout our lifespans. Inclusion starts by understanding that we are part of the community and deserve to be included in it. As children, we may not be ready immediately for full inclusion, but full inclusion should be the ultimate goal for every Autistic child. Full integration into the community means living outside institutional or segregated settings and working outside a segregated setting. If we need accommodations or support to fully participate in the community, then provide those accommodations. We need to belong.
5. Listen to us. Too many conversations about us and issues that affect our lives take place without any of us present. Listening starts by recognizing that we have valid, legitimate, and important things to say about our lives and about the issues that affect us collectively. Like any group of people, we are not homogeneous in opinion or ideology, and this diversity is part of the Autistic community. Yet we must be included in any conversation about us, because decisions made by policymakers, school administrators, and grant reviewers often impact our daily lives and our future outlook. We can speak (or write or sign or type) for ourselves, and it’s time to listen.