Sheffield Autistic Society – July Newsletter 2024

Here is a round-up of information and news for JULY 2024. There is a lot going on so we hope you will it find useful and of interest.

Latest News 

Autistic Burnout Presentation

Rosie Bull from Sheffield University gave a brilliant presentation at our Sheffield Autistic Society’s Adult Autism Support meeting about dealing with autism burnout.  

I know many of you were not able to attend so Rosie has kindly supplied the presentation materials from our session.  

The presentation was based on the findings of an autistic researcher called Dr Alice Nicholls and the link is here:

How to Get Out of Autistic Burnout – Dr Alice Nicholls

View the Autistic Burnout Checklist here:  The-Autistic-Burnout-Symptom-Checklist

Read the session summary here: Understanding Autistic Burnout – Session summary

  Autscape – Autism residential retreat/conference 28th-31st August

Autscape is a yearly event which aims to provide a positive, supportive space for autistic adults. We have many activities to get involved in, centred around a main programme of informative and educational presentations/workshop, which include up-to-date information on developments in the autistic world, as well as useful tips for living full lives as autistic people.

For more information, please visit our website: www.autscape.org

This year will be our 20th, so we’re hoping as many people as possible can attend. Please feel free to ask any questions by email to James Pelham at jamespelham@hotmail.co.uk

SAPAG support meeting (parent/carers)

The next SAPAG support meeting will be at 7pm on Wednesday 17th July at The Curzon Cinema in the upstairs cafe bar area.  

Inside the entrance door, turn left, walk straight on to the stairs and we will be in the upstairs bar area.   

Look out for the table with the SAPAG label.  You can order a drink at the downstairs bar before coming upstairs.  

This is an opportunity for SAPAG members to meet socially and receive support with ongoing challenges.  We welcome parents who are new to SAPAG and look forward to seeing old faces again too!

Carers Centre Update

Free canal trips for carers

There is nothing quite like a day on the water to recharge your batteries, and we have partnered with The Ethel Trust to offer free canal trips for carers. 

We can take 10 carers on each trip so places are extremely limited. 

The available dates are 18 July and 13 August. We will leave Sheffield canal basin at around 10am and should be back by around 2pm. 

www.sheffieldcarers.org.uk/forms/canal-trips-for-carers

Below are various activities and support group events for carers this month.
we always aim to provide accurate details about our events, but some are organised by carers/volunteers so may be subject to change.

www.sheffieldcarers.org.uk/calendar-of-events 

Sheffield Parent Hub 

Sheffield City Council’s Parenting Specialists provide group based and one to one parenting support for parents and carers of children, from babies to teenagers.

We deliver programmes that are evidence based, and tried and tested. This means that the content is written by professional psychologists who have years of research into what works to manage behaviours and difficulties that we can all face as parents. These programmes are delivered across the world and have over 30 years of research behind them.

There are different types of groups you can access depending on your needs and the time you have to spare. 

To find out what’s on and when in your area see our Sheffield Parenting What’s on Guide on the below website. Details will also be posted on our Sheffield Family Centres Facebook page.

All our courses are available to parents who live in Sheffield only. Please contact your local authority early help team as they may offer something similar. 

Any bookings made by parents not in Sheffield will be cancelled .

 www.eventbrite.co.uk/o/sheffield-parent-hub-17631456258

SENDing Voices

Sheffield City Council Community Youth Services have set up a group called SENDing Voices.

The group is for young people aged 13 – 25 with a Special Educational Need or Disability (SEND). It is for those who want to help make things better for young people with SEND.

Meet up every 2 weeks – meetings will be in an accessible venue in Sheffield City Centre or online 

  • Talk about experiences of being a young person with SEND
  • Work on issues important for young people with SEND
  • Work together with other young people and adults to help make things better
  • Do fun activities as a group
  • Share ideas and experiences with decision makers
  • Help to make SEND services better for young people in Sheffield
  • Meet new people and make new friends
  • Be able to include this on your CV and get a reference for future jobs or college applications
  • Get to do different activities

Time details

The group meets once a month – either online or in a venue

Contact information Tel: 07391 739118 Email: youth.voice@sheffield.gov.uk

Website:

https://www.sheffield.gov.uk/schools-childcare/youth-services-transition

Take part in research 

Mental health and autism experiences 

Researching the experiences of carers/parents of Autistic adults (18+) to gain insight into their perspectives and experiences with adult community mental health services. 

This is a vital research area to help improve mental health support for Autistic people.

  • What are parents’ experiences of adult community mental health (CMH) services for their Autistic adult-child? 
  • What do parents perceive as barriers and facilitators to accessing and receiving support from CMH services? 
  • What, if any, are the unmet CMH service needs for Autistic adults, from parents’ perspectives? 

 Please see attached poster if you wish to take part 

Physical activities and autism 

The aim of the study is to survey autistic adults about their current physical activity levels, preferred modes of physical activity, and current mental health status, which will include levels of anxiety, depression, and quality of life. 

The research team, is  Hollie Storey, Dr Jumana Ahmad, Dr Claire Rossato, and Dr Trevor Thompson at the University of Greenwich and Dr Bethany Oakley at King’s College London. 

Please see attached paper if you wish to take part 

Sheffield Parent Carer Forum Information sessions July

Booking essential 

 For full information and to book any event please click on the link Events | Sheffield Parent Carer Forum

Coffee & Chat 

Offered every two months in a community venue. These drop-in sessions will offer a chance to meet up with other parent carers and chat with our amazing volunteers. 

The sessions will also offer booked appointments with a specialist. Dates, times, and specialist details will be advertised on our Events and Facebook pages.

 Get Involved – Adults

Adult Autism Support Hub – now open

The aim of the new service is to develop and deliver provision offering support to autistic people aged 16 and above, and their (informal) carers and families.  

People will be provided with information, advice and opportunities to connect with community groups and support in a welcoming and safe environment. What we can help with:

  • Benefits Support 
  • Confidence Building
  • Understanding and information around diagnosis support
  • Finding out what is happening within Sheffield to support with other avenues or support and/or social opportunities
  • Employment Support
  • Family Support 
  • Mental health advice/signposting
  • Peer Support

Opening Hours: Monday, 10am-2pm, Tuesday, 5.30pm-8.30pm (Virtual support), Wednesday,10am-2pm, Sunday, 5pm-8.30pm (Virtual support)
Address: MHM Building, 44 Bank Street, Sheffield, S1 2DS (Monday & Wednesday only)*
Who can access this service: Anyone 16+ can access this service
Referral criteria: People can self-refer 

Support available: One to One and Group support via phone calls, face to face appointments, online video consultation and email.
Get in touch: 07811 589 909 | adultautismsupporthub.mhm@nhs.net

 Website: https://www.mhm.org.uk/adult-autism-support-hub

 Join the A Team!

We are a group of adults on the autistic spectrum who meet socially on a regular basis either just to enjoy ourselves or to learn something new or to improve our physical or mental health.  Some of us are parents, some work for local employers or are self-employed, others engage in volunteering and other forms of work experience and others still are studying.

We have a number of regular activities which include a monthly meeting at a friendly city centre pub,  a monthly walk in the area, a monthly art/craft event, a fortnightly snooker club and a monthly online social group. We send out a weekly newsletter to members about activities that are coming up and wider events in Sheffield.

 For details of how to join please see https://sheffield-aspergers.org.uk/a-team-social-group/

 WAND – Autistic Women’s Network

WAND is a self-run community of Autistic women, providing a completely private online forum as a safe space to share stories and experiences with each other, give each other informal tips and advice, as well as providing opportunities to meet in-person in small groups based on shared interests and activities. The group recently became a fully constituted voluntary group with an organising committee.

Anyone who identifies as an Autistic woman can sign up for the forum here.

 ACCTing Out Social Group

ACCTing Out is a social group for young autistic adults aged 18 and above. We run fortnightly activities normally on Tuesday evenings, to places like the cinema, to play pool, go for a meal, and more. The group runs supportive social opportunities that help young adults to get out of the house and participate in activities with friends and peers. The group aims to help boost the confidence and self-esteem of young adults, have a positive impact on mental health and build social, communication and life skills. Each ACCTing Out activity is led and supported by ACCT staff and volunteers.

 For details of how to join please see https://acctsheffield.org.uk/accting-out/

 Peer support – ADHD Adult Group

Face to face meetings upstairs at the NHS Walk In Centre on 75 Broad Lane, Sheffield, S1 3PB.  Second Wednesday of every month 6pm to 7.30pm.

 For more details contact: ADHDPEERSSHEFFIELD@GMAIL.COM

Sheffield Support Hub 

What can you expect from us?

The Sheffield Support Hub offers free mental health support in a welcoming, comfortable, non-judgmental, and non-clinical environment.

Our experienced staff team is available to provide emotional, social and practical support if you are in crisis or feel you are heading toward a crisis situation.

Phone: 07890 987 384
Email: sheffieldsupporthub.mhm@nhs.net
Opening hours: see attached  
Address: 44 Bank Street, Sheffield, S1 2DS

Autism Waiting List Project

In collaboration with SAANS, VAS and The Sheffield Autism Partnership Network (SAPN) are carrying out a 6-month pilot project aimed at improving the experiences of people on the waiting list for an adult Autism assessment.

From March to August 2024, chosen organisations are available to provide you with support and advice to help improve and maintain your wellbeing, no matter where you are on your diagnostic journey. 

The organisations which are part of this pilot are because of their experience in providing wellbeing and practical support to people across a variety of communities in Sheffield, alongside their commitment to making their services accessible and friendly for Autistic people or those experiencing challenges that are associated with being Autistic. They’ve also completed training to expand their knowledge of  benefits and access to work, gender differences in Autism, suicide awareness and prevention and differing communication needs.

For full details please see :  https://sapn.org.uk/autism-waiting-list-project

Autistic friendly swim at Concord Sports Centre

An autism friendly session takes place on Sundays between 3.45pm – 4.30pm: Autism/Sensory Swim.  Please see website for details of pricing and booking https://www.sheffieldcitytrust.org/venues/concord-sports-centre

 Inclusive LGBTQ+ Café

A social meet up for neurodiverse/disabled members of the LGBTQ+ community. Email Kelly.scargill@disabilitysheffield.org.uk for more information.

  • The Peer Support Service for parents/carers from Sheffield Parent Carer Forum

The Peer Support Service was created in response to feedback from parents of children and young people aged 0-25 with special educational needs and disabilities (SEND) in Sheffield. Feedback clearly showed that there is a lack of support both before and after a child receives a diagnosis. Although the funding for the project has a focus on autism and other neurodevelopmental needs, our service is available for ALL families, with or without a diagnosis. We will continue to work closely with families in Sheffield, listening to their ideas and concerns, using these to shape the service going forward 

If you would like a 1-1 appointment, please call our main number 0300 321 4721 and select option 1 for our Peer Support Service. Alternatively, please email peersupport@sheffieldparentcarerforum.org.uk

Get Involved – Children and Young People 

Family Support Groups

 Autism Hope Sheffield

We are a support group for parents and family members of children of all ages, with Autism Spectrum Conditions based in north Sheffield.  We meet weekly to offer support, understanding, advice and friendship to each other (during term time).  We have in person meetings with a cuppa, cake and chat and also zoom meetings if you can’t make it in person.  We have regular guest speakers from organisations that can help and signpost to other services.

 Contact Details:  Email Address: autismhopesheffield@gmail.com Facebook: Autism Hope Sheffield Tel: 07968 984179 Web:  https://www.autismhopesheffield.co.uk/

 ACCT Sheffield

We run a wide range of in-person and online activity groups for autistic children and young people, parent-carers and whole family activities. We run several sessions each week, including multi-activity groups and specialist sessions focused on particular activities that children and young people attending ACCT has asked us to run.

 Our regular activities currently include:

  • Acctivate – multi-activity in-person group for autistic 5-12 year-olds held on Saturday mornings (9.45am-12.15pm). Places available through Sheffield City Council’s referral process.
  • Teenage Club – in-person group for autistic teenagers aged up to 18, held on Wednesday evenings (7-9pm). Places available through Sheffield City Council’s referral process.
  • ACCT Academy Football Coaching  – Friday evenings (6 -7pm) at Goals on Norfolk Park Road. Book a place by contacting ACCT.
  • Minecraft Club (Online groups) – facilitated by ACCT staff and run through a private server. For any age, every Saturday morning. ACCT has guest logins available for participants who don’t have their own. Book a place by contacting ACCT.
  • Dungeons and Dragons (Online groups) – facilitated by ACCT staff and run over Zoom. For teenagers and young adults. Every Monday evening or Saturday afternoon. Book a place by contacting ACCT.
  • Parent-Carer Meetings – ACCT runs fortnightly meetings, on Tuesday evenings, via Zoom, for peer support, information sharing and discussion of topics of interest and importance to parent-carers of autistic children and young people. Book a place by contacting ACCT. We also run workshops and training for parent-carers.

 Places at Acctivate and Teenage Club are available through referral by contacting Sheffield City Council. All other activities are available directly from ACCT. Join ACCT as a member (it’s free), then contact us to book a place. More information about referrals and joining ACCT available here https://acctsheffield.org.uk/about/ 

 Sparkle Sheffield 

Sparkle Sheffield is a local registered charity that supports children and young people from birth to 25 with Autism Spectrum Conditions and other social communication difficulties. Founded and run by parents who have autistic children, we understand what life is like and how we can work together to improve our children’s and our family’s life. Sparkle Sheffield exists to support families with autistic children meet the challenges they face, feel less isolated, less frightened and more empowered. Autism affects individuals and their families in a wide variety of ways and the approach we use recognises these individualities.

 Sparkle Sheffield aim to support and help individuals and families by providing:

  • Opportunities for children and families to create a support network with others in similar situations – we regularly organise online and in-person events where children and families can meet others without fear of judgment.
  • Providing support for autistic individuals: social groups, activities and forming friendships – we host regular events such as Ninja Warrior, swimming, cinema trips and other fun activities.
  • Providing a circle of support for individuals to feel they belong and fit in, have friends and develop the strategies and skills they need to succeed in life.

Most importantly – we have lots of fun in the process!  https://sparklesheffield.co.uk/ 

 SSENDIAS information sessions
Sheffield SENDIAS (Sheffield SEND Information and Advice Service) offer free online information sessions.  These are for parents and carers of young people aged 0-25 with SEND.   The sessions answer some of the most frequently asked questions.

There are various sessions available, which run in both the daytime and evenings covering topics such as:

  • – What is an EHC Needs Assessment
  • – SEN Support in Schools
  • – Checking a Draft EHC Plan

Details are at https://sheffieldsendias.org.uk/training-and-events 

 SEND Youth Clubs

Sheffield City Council Community Youth Services run the following youth clubs for young people aged 13 to 25 years with special educational needs and/or disabilities:

  • Leo’s SEND club: Monday 6-8pm, Centre in the Park, Guildford Avenue, Norfolk Park, Sheffield S2 2PL
  • S Club 5 SEND club: Tuesday 6-8pm, Milan Youth Centre, Longley Lane, Sheffield S5 7JS

Just turn up to your chosen club and a Youth Worker will help you to complete the registration form. For further information contact Community Youth Services on 0114 2057450 or e-mail youth.services@sheffield.gov.uk  

Support for Carers 

    • Sheffield Carers Centre is a local independent charity founded in 1993, that is also affiliated to the national Carers Trust charity. They provide a range of high quality services to unpaid adult carers in Sheffield. They can offer a range of support including:
  • Carer Advice Line: Call us for personalised expert advice on anything related to your caring role. One of the team is an Urdu and Punjabi speaker, and we use an interpretation service for other languages.
  • Carer Card: This offers discounts on a wide range of services, products and activities from local and national businesses; plus there is space to record two emergency contact numbers.
  • Carer Activities & Carers Workshops: Regular activities for carers to have a break from their caring role and look after their own wellbeing and a programme of workshops to help carers share experiences and learn new skills.
  • Legal Advice Clinic: Free 30-minute individual legal advice sessions with a legal expert, offering advice around topics such as wills, estate planning and power of attorney. Clinics are held on a monthly basis.
  • Carer Café & Support Groups: The Café is held every Friday and is a great chance to meet other carers. The Support Groups take place at various locations around Sheffield on a regular basis.
  • Community Connect: A telephone support service providing regular phone calls from volunteers to reduce social isolation and connect carers with their local community.
  • Emergency Planning:  We provide information to help carers make an emergency plan if something unexpectedly stopped them from looking after the person they care for.
  • Carer’s Assessment: A carer’s assessment provides an opportunity to discuss the impact of your caring role with our Carer Advisors, who will discuss the support you might need and help put this in place.
  • Time for a Break Grant:  Small grants for short breaks or activities that support wellbeing and help you take a break from your caring role. We’ll assess your eligibility as part of a Carers Assessment.
  • Information and resources:  Easy access to a range of information and resources on our website from expert sources covering more than 20 topics to help with your caring role.
  • Digital Resources for Carers: Carers can access the free online ‘Digital Resources for Carers’  provided by Carers UK and Sheffield City Council, includes information, eLearning, resources, and the Jointly app.
  • Carers News: This free monthly E-newsletter provides up-to-date information about our services and activities, along with key news items that affect carers.
  • Details of all of the above are at:  https://www.sheffieldcarers.org.uk/i-am-a-carer-so-how-can-you-help-me

    Working together for better services 

    • What is the Sheffield Autism Partnership Board?

    Sheffield’s Autism Partnership Board (APB) currently meets each month to improve the provision of services and support for autistic children, adults, their families and carers in Sheffield, including young autistic persons in transition to adulthood. Members include representatives from Sheffield City Council and local NHS bodies, community and voluntary sector organisations and services; autistic adults, their parents, carers and family members, professionals and other relevant organisations and individuals.

     You can read more about the work of the APB on our website here https://sheffieldautisticsociety.org.uk/partnership-key-documents/ 

    • Sheffield Autism Partnership Network (SAPN) 

    The Sheffield Autism Partnership Network is a Sheffield based consortium focusing on improving the lives of Autistic people and their families in our city.

    It is a network of organisations (voluntary, community, public, private and statutory), Autistic individuals and their support systems (parents, carers, friends, partners, etc) who work with Autistic people, their families and carers.  For information about the network, its member organisations and how they can help you and your support system see the website: https://sapn.org.uk

    Best wishes 

    Sheffield Autistic Society